Good Death / Bad Death – What are they –

As someone who is trying have faith in God I’ve discovered that in Death if someone is for instance of an older age had their families lived their lives way wanted an accomplished all they wanted that when time comes it’s ok to not pray for recovery or healing but actually pray It time for them to pass peacefully meet their makers an for them to take their place in heavens realm in we one day see them again., With my grandad in the last few weeks seeing him in hospital so old, so frail not the person once was I knew his soul was ready leave this life it was to be hard but I did pray God listened to his Will his heart an if his time let him go peacefully, shortly after my Grandad passed my sons Great Grandad had a major stroke one he would not recover from he was moved to a home to make he’s final few weeks comfortable an again I prayed God listen to his heart an his will an when time comes let him to go peacefully. I’ve discovered that these deaths are classed as good Deaths strange notion a Good Death. But it then got me thinking about my daughter she was born still born she had severe spina bifida an hydrocephalus her death was not expected or planned whe received news did I prayed doctors had got wrong, I prayed for divine an medical intervention even asked for a blessing of healing over my bump but at the follow up consultation the harsh reality my child would not survive birth was put to me an that it’d be better end the pregnancy early an deliver her born sleeping an so I did at 22 weeks an 6 days surrounded by our immediate family I did will myself to Die too moment she did my body shut down crash team called in my family ushered out my mum prayed to god don’t take me her baby an you’ll gather I survived but I did suffer terribly mentally for years afterwards tortured myself spent along time in an out of psychiatric services took along time for the guilt to go to mourn it was an always will be a bad death as I’ll never understand why when discovered pregnant was given the precious gift of life to have cruelly ripped an snatched away, then we move onto 2013 I finally went on to have my rainbow baby 10 days before Christmas the child who brought me hope after darkness an is my continued reason to fight the darkness as in August 2016 I lost my brother, by best friend to a preventable suicide for 21/2 years he battled demons was tortured mentally lost his soul to his alter ego an became possessed by a doll my family an I we constantly thought for help for him in the May of year he died we thought he’d finally turned a corner he was moving into mental health supported housing, he was volunteering at St. George’s an at. TCV hollybush was given a new lease of life was optimistic we’d get our Tim back but for whatever reason we don’t know why we are now fighting for answers why, What happened for him to deteriorate mentally again, why were the signs not picked up on , why when he reached out for help was it not given why the week he died did Accident an Emergancy not intervene why did his Gp not intervene an why did the staff at the supported living not intervene. Since losing Tim my family an I are now mentally tortured physically an emotionally drained an having now fight the NHS an social care an now the legal system to get the answers why today should be a day spent with my son but sadly I’ve had to make childcare arrangements will go to my mums argue an negotiate with our solicitor an barrister with my mum the band aid plaster trying protect me from hurt of losing Tim will be ripped of as mum an I will again have review an critique all the legal paper work an Work out our next steps today I’m mentally preparing myself for news that the courts have rejected our notion for the judicial review that’s challenged the coroner’s decision regarding article 2 and preparing myself our legal team may tell us stop perusing and I too now am slowly losing my faith an sense of hope because I can not move on with my life, days of feeling happiness have disappeared it’s know a battle of get through each day best can because I’ve my son an he needs me an I don’t want my family facing anymore heartache an pain, I throw myself into fighting for answers for tim, trying challenge the system get changes made but we are no further forwards but rather further back I don’t think we’ll get the answers an closure we’re looking for an destined to carry the heavy burden and pain of losing tim with us and Day he died to part of us to died his death changed us changed how we see life, how we now interact an engage an took part away our hearts and souls so we’re no longer the people we used to be I try engage in life because of Myles but at same time have cut myself off an detached myself from certain aspects to survive the hell were now facing, losing a child at whatever age to a parent is never a good death it wasn’t something I’d ever want me an mum share going through and losing a brother to a preventable suicide wasn’t a good death neither they are bad Deaths ones I know struggle with an carry heartache off to me they are bad Deaths an when time comes I will tell God that and I know he’s expecting that because I do know argue with him, challenge verses in the bible do not pray as devoutly as once did an sadly feel him lost from my life I do try search for him but am on a string hold now with my faith I once cut him out my life if not for my son probably would have done because as I said earlier he’s my continued hope in darkness I fell myself he’s my gift from God an with that comes the sense I’ve to be eternally grateful an so I persevere in my ongoing battle with faith in life we do all die but death is not always Good because some Deaths are not inevitable an those that die too soon had more out of life to give did not have The chance reach their potential an life had more to offer them an so death was bad and robbed them of the joy of life the pain of that death an fighting to understand why then ripples throughout the lives of loved ones so when people talk about death I’ve discovered some deaths yes are good and some are just as equally bad an it’s important when people now talk about death consider what is a good death an Too what is a bad death an how you know support people going through that x x x

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The fight gets harder broke that little bit more learning from deaths an meeting at the dept of health 10/05/2018.

It’s coming up to 2 years since I will have sadly lost my brother to a preventable suicide in Mental Health Supported Transitional Housing after been allowed to fall through the cracks an not put on any care Pathway by the Mental Health Trust he was under and passed between them and Adult Social Care. I’ve tried fighting for answers challenging the system and asking why, How could they ignore the signs, ignore his pleas were was his Duty of Care. I’ve been dipping in an out of NHS Englands Learning From Deaths work and the team leading they are trying but just like us Families I think they’re up against it too. How do you change an archaic driven system,. Today I was invited to a 1 hour meeting with the department of health and was speaking on 4 areas that need addressing and helping push the guidance through that families put their blood sweat an tears into, my mum an I we too put ours. Today I was focusing on the legal power imbalances families face in fight for answers and the hurdles we have accessing our loved ones records an when u get its only a half story an leaves you with even more questions and thing today I let some of the frustrations feel come out an do normally try hold it together thing seeing my loved ones and loved ones of fellow families made me want demand answers as to us after that meeting we don’t go home forget about, put to bed let something reprioritise it because we have the stark reminder someone is missing, for many it’s their child and they’re robbed of seeing them grow, get married, achieve their dreams an them one day get married an families of own, With Tim I’ve been robbed of my best friend we was like two peas in a pod he was the one who guided me though some of my darkest moments an their at my proudest looking at his photo in that meeting hit me wanted scream you all murdered my brother your systems, processes and pathways are harming not helping in our fight one thing we hear regularly is “failure in breakdowns in communication ” a gp can’t see Paris and record on it the NHS can’t see the gps system one and record and that and the grey area duty of candour is not assisting an a hinderance is the grey area of confidentiality an record sharing or in Tims case not record sharing and when you add local council record keeping an the supported living recording system it’s no wonder tim, us as a family an his navigator was hitting brick walls. Failure in communication is not an acceptable answer to why someone is driven too take their own live, before the meeting I was chatting with my sister on how we feel about Tims death an we want to be angry with him but we understand he wasn’t ok an today I needed let some of that anger an frustration how dare they say computer said no surely that should be something can change. Telling Tims story an where we are at with the inquest process is frustrating we’re gridlocked an at a standstill because we’re going through a judicial review because sadly the coroner is listening to two sides an not the side that matters us that matters the family. If my brother’s death had been in hospital we’d have been granted a Article 2 enquiry automatically if was a NHS run supported living would have done but because Social Care the coroner’s using the grey area death in community. I told them today if we lose the review we lose all legal representation and aid and have to fight for answers alone and that many families met recently had represent themselves an that any requests had were denied and so outcomes didn’t go in their favour they didn’t get their answers and left now fighting that bit more yet the evidence was clear for all to see, I told them I should be grieving my brother but I don’t I’m my families advocate I review, critique try put the jigsaw puzzle together and find the solutions to the failings an that’s not fair it’s left me physically an mentally battered and been offered no support by those who failed him apart from a token book coping with death of a loved one to suicide I don’t want to cope with his death I want him in my life I want to know no other family will feel my pain and it’s hard to gage did they listen, take note will things be done and implemented an changed the people in room today can’t expect us to be patient in our quests, can’t expect us be fobbed off to us they’res too much at stake, we just want openness, truth an accountability we need to grieve to mourn, to try lead lives without those we love as hard as it is it’s not fair be gridlocked no we’re further nor nearer to those answers an solutions because whilst we’re gridlocked we add to the growing number of historical cases my family we’re only short way in and we’ve one long road tred but if today taught me anything the fight will get harder, will break me that bit more but it’s not a fight will walk away from Tim deserved so much more and so did the family’s lost loved ones because I’m not going away harmed patients an families too won’t go away because we broke the day our loved ones died you can’t break us anymore so you might as well help us piece ourselves back together let me grieve an mourn let me free my brother’s memory free not keep having air his broken story give us the truth it’s time he had dignity in death let me dream he’s know free with my daughter in heaven I want to let him go and let him be free my family need free ourselves to off our pain an anger. X x

The fight to be granted an Article 2 Inquest for Tim continues…

Yesterday me and my Mum met with our Solicitor regarding Tim’s Inquest was that the Coroner did not overturn his decision on Article 2 and disclosure was because my brother’s death was classed as been in the community regardless of the fact of him living in Mental Health Supported Housing, apparently Tims Death is a grey area in eyes of Law because he’d not been sectioned or detained he was not classed as immediate risk, he went for help on Monday was seen at A n E but because didn’t come out an Say “I’m Suicidal, I’m going to harm myself, End my life was reason why did not get admitted, I in the past have felt torn one hand want fight my demons on other want give up I also no at times felt want give up wouldn’t tell anyone what my intentions were, fact he’d taken a minor OD suggested he was at some element of risk , the fact 2 days prior reached out again saw his GP and his GP only offering Tea an Biscuits should have again highlighted needed help, highlighted again was a risk but because in the community the grey area he had capacity make choice did, if admitted to hospital till his key worker who became dependant on may have kept him alive, kept him hate say safe because he’d have been took away from what his stressor obsessing about his housing, finances,benefits,low self worth due been unemployed and his death would have been prevented if detained because not detained he stayed been at immediate risk, regardless been in the community, been in hospital the fact remains he was not mentally ok an that meant he was at immediate risk, I’m saddened the coroner didn’t grant because he has all the evidence their say was immediate risk but because 12 months outdated and not reviewed by those who were supposed to coroner has assumption then not an immediate risk, he at that period was , he was for the last 2 1/2 years of his life was an immediate risk an never stopped been adequate an a up to date review would have proved that but wasn’t and why arguing failed in his care it saddens me that powers that are responsible and their actions are now impacting on the legality’s and imposing further on our fight for answers why, we only want answers why to mourn, to heal, so lessons can be learned other families don’t feel our pain, people like Tim be saved, it saddens me more that if wasn’t for Legal Aid funding we wouldn’t have got this far, we’ve to hope now we can get continued funding to take to Judicial review and potentially try bring about new case law and get Article 2 be granted and it’s a fight we want to fight for , the services that were responsible , the ones with all the answers, one who not engaging with us as the family the state has an unlimited money pot for their legal army, talk about them having the unlimited power an control, we as a family should not be saddened, worrying about now the If and If get funding all families who’ve lost a loved an have go through the inquest process should automatically be funded more so when is the state going up against an for us that’s the NHS an local council we’re does anyone get the money to take them on to get the answers, the justice for lessons be learned and I can only pray, hope, wish funding continues if not I don’t know what we’ll do next I only no we won’t be throwing towel in, well come out fighting that bit more.

After what was a shit morning we did however still remain optimistic, plodded on with our day still continued with wanting support NHS England with their Learning From Deaths work and headed down to Quarry house in Leeds to feed into preparations for attending an event in WestMinister to continue an drive the work forward I must admit I took my tension from the morning out on the taxi driver so was composed when went in, sorry to the roadrunners taxi driver, were still optimistic as a family we can try ensure families not treated in same we’ve been , we’re still optimistic we can make something good to come from something terrible, we’re hopeful to that at the event we can be matched with the trust that failed Tim so we can demonstrate that families can work together with them an hope that they see after the event is important to meet with us as a family start the process again work with us to understand the why’s the if’s and importantly us work together on what could have been done differently an would have potentially prevented Tim’s death an hopefully us work with them to prevent deaths like Tims so deaths like his don’t become grey areas and so can only hope too as we continue fight for an Article 2 Inquest that in meantime we can work with the trust and lessons from his death be learned,

As a family we’ve tried be compassionate, empathetic an understanding with the Trust tried listen to potential excuses why failings, funding, staff shortages, difficulty getting access to certain services an continually try engage with them so why’s it hard for them do that as fundamentally they should do that, it’s not them that’s facing pain an heartache we are an should be us not them had choice hide behind closed doors because not ready face but we’ve no choice we have to face to fight and so Tim for you we will continue to do so.