Engagement session wobble Care Navigation

Today I thought I was looking forward to today’s service User Carer meeting with the Royal College of Psychiatry we was looking at Care Navigators and what a good one looked like, I was all psyched tell them about Tims Navigator Gary Wright the one who went above and beyond for Tim the one who did everything for him the one who services let do everything for Tim but never checked in on was everything ok, never got back to Gary when he had concerns, Gary helped Tim with many aspects of his life even tried addressing Tims mental health needs. Tim was only meant to have Tim on his books for a few weeks but he knew Tim needed intensive support an was not getting from statutory services. I was all excited to share some of the good out of the sadness I tweeted, fb an linked in an update and a pic of Gary with my mum in his fun run tshirt he did a 10k for Wyfi an ran in memory of Tim. But the closer the train got to kings cross did overwhelm swallow me up, I became over stimulated, hyper sensitive walking down to the Royal college of Psychiatry after getting of the tram felt like walking down a minefield the noises of passing traffic, work on nearby buildings, footsteps pounding down the street felt super sonic my mind went into a haze, mentally shutting off, instincts saying can’t engage today I’d triggered myself consciously I thought talking about wyfi been a good organisation would be ok but subconsciously I was challenging why other organisations that came into contact with Tim didn’t do same, i was winding myself up. When I arrived I saw the slide on what we’d be discussing I sat in my seat eyes fixated on the screen I got this but boom tidal wave hit floor was swallowing me up, hands face burning, dry mouth, knees buckling, heart pounding I had get up, I had flee, I made a coffee got upset wiped myself down berated myself I went back in I tried inputting, sharing ideas but everything felt amplified an that made me feel trapped in , hemmed in, panicked which then makes me reactive I know a good navigator why could I not get my points across with going into overwhelm felt not listened to felt I was fighting for something good I felt challenged but probably wasn’t, Care Navigators though I passionately believe in, I know what I’d want in one, I know the type of relationship we’d have I know how I’d want them engage with me, my family an all areas of my life the physical, mental an social but today just not on ball. One of members of group gave me a cuddle I broke its hard fighting for good, it’s hard engage with services it’s even hard engaging when at an engagement meeting. It’s hard though things regarding Tims inquest been know at a standstill and it weighing heavy in my thoughts an heart and today threw me off my A game I’m hoping sharing the slide someone could answer the questions on to them what they’d want a navigator look like because I’ve completely disengaged as I no longer trust the model or service or that they’d get right hoping people can though get their voices heard an I’ll happily forward your thoughts to team an you help me to try focus an be engaged whilst am a little wobbly today taught me need practice self care when engaging in engagement work and trying fight to make change an fighting for answers for tim my brother an best friend. Today wasn’t a good day but won’t let it sway me I’ll brush myself off and try again another day

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Myles next Milestone

I’m laid in the dark feeling nervous, anxious sick to my stomach my baby sleeping next to me, my baby been my 4 year old son. Either at Midnight or sometime tomorrow my baby will get his email confirming his school place. At first I was only anxious would we get our first choice, then it was anxious would he adjust going full time Monday to Friday, then when nursery started introducing homework as part of getting school ready that anxiety hit is Myles school ready then I had the excitement ooh I’ll have all this extra time can look at having my life an identity back try have a career but then hit with the stark sadness an anxiety crap am going to have all this time an how am I gonna fit in Myles have so many different expereiences us doing stuff together time will be drastically confined to weekends an soon the school holidays. Myles has grown to quick times gone too fast the Milestones are forced stages of transition, times forcing me to face up to he’s no longer a baby, nor infant nor toddler I’m not ready for the next stages I want to keep him as my baby for longer. Stomachs knotting, twisting heart beating ten to dozen, palms sweating, fear, panic, kicking in one email changes everything, one email don’t think actually want to open, one email don’t want to be one that forces the realisation Myles school is which equals Myles is a baby no more don’t want fell that sadness, that feeling of loss that comes with the next stage an Milestone. That emails also the stark reminder of a moment a milestone never had with Marybeth it’s a stark reminder of a moment missed out on with her. I wonder what would happen if I didn’t open, didn’t acknowledge would it go away could I keep Myles as an infant, baby, toddler a little longer, I wonder if Myles is aware an understands the process of been ready for school it would make the anxieties easier manage if he was able say Mum I’m ready it’s time but he’s only 4 an that’s a big ask of a 4 year old say Mum I’m ready for my next Milestone, next chapter in my journey, I’m ready mum for school, I’m picturing though me wanting shout but Mummy’s not ready just yet can we not just keep you are just a little longer an us choose when ready for Myles next Milestone because how do I cope, how do I let my little boy grow up x x

“I’m Sorry Too Tim”

Facebook can and can’t be great when overcoming the loss of a loved one, On this day sometimes will have a happy reminder a memory a photo, tagged a conversation had and they’ll put a smile on your face, Other days you may get a On thus day reminder that brings a lump too your throat a tear to your eye one wish could erase, one wish could reply too, one if went back in time you could change your attitudes an actions too. 2 years ago today Tim you left a Facebook Message for Mum on my wall saying I’m Sorry and what you we’re Sorry for you weren’t entirely to blame it was Nanna an Grandads Anniversary do you we’re so excited about also very anxious about you we’re struggling with grips of your demons with Mental Health, battling recovery finding your feet. Me, Jay Nat an Robynn holding you at arms lengths constantly judging you stereotyping you we’re probably guilty of been a bit cold, standoffish we were more concerned Nanna an Grandad had a great do than checking you we’re ok. You we’re been bought drink after drink we should have told you Tim enough we didn’t we assumed you’ld been on something not just the drink., I should have remembered alcohol can counteract medications your own and how you were that day was a result of that and not stereotyped you for being on something as it’s only since your death we’d been made aware you were drug free had been a good 10 months so on this day 2 years ago you weren’t on something and when u got loud an Merry with the drink we should have stayed, ensured you got home but we didn’t we left when Nanna an Grandad did you stayed with family an one of neighbours of mum an Nanna’s street they got you drink after drink took you on to another pub somehow u ended up outside mums caused some disruption with your loudness somehow got bundled back into a taxi home you must have gone on fb said I’m sorry Mum on my fb you knew she’d see it their or I’d comment but I sadly didn’t I was stewing with you, I’d judged you assumed you at fault questioned how many more chances we should give an like a child I ignored you didn’t reply an today your on this day post came up an it cut me up because didn’t thing what made harder see was we’d had a meeting with the NHS they’d took into consideration that you we’re off substances an we’re going acknowledge in your report we asked also that staff attitudes that were stigmatising towards those with both mental health and substance misuse be addressed I.E Judgement Free Care because we owed it to you that changed also it was to recognise that you wasn’t the person who’d been wrote off and should have been supported an it recognised the efforts of your recovery journey so Today’s On This Day Today I too was guilty of that behaviour an stereotyped you unfairly I should have stepped up, stepped in cared for your wellbeing not judged or assumed anything about your behaviour should have got u come back to Bradford stayed over a Chinese and you’ld not have had to felt apologise as you’ld have been with us as that event would never of happened outside Mum’s. We’ve a still a long way in finding out the answers why To failings in your care and things be changed but glad today we made one small step they recognised you weren’t on drugs and hadn’t be for awhile I hope in heaven it goes towards me saying Tim I’m Sorry Too and I wish could turn back the clock but know what know now and changed the course of your future thought for you as much do now, believed in you better and pushed for better treatment an care challenged not just professionals towards you but ours too and gave you the love and care you so desperately needed and made you feel worthy and built you up if done that you wouldn’t have felt in end way you did an you wouldn’t have done what you did on that fateful day on the 26th August an you’ld still be here and so Tim Im sorry I too made you feel way did an wish I didn’t have unfairly judged you because you Tim you never did that and in when I too had my own blips you never judged or shunned or stereotyped me you did what we should have done we should have looked out better for you maybe on this day today next year am optimistic we’ll get the answers, lessons will have been learned an my sorry back to you I’ll feel able write but for now I’ll share the comment on my blog an say Tim I’m Sorry Too an I love you always and 4 eva and you know saturdays an extra hard day 4 me an so I hope u can give my princess a kiss and both be with me in spirit x

Exhibiting your Bench A piece to remember you by Art for Recovery Exhibit 2016 x

Today on my Facebook Timehop the pictures of your bench been exhibited at Leeds Art for Recovery Event popped up Tim, I remember during the time my grief felt raw an after I’d got to know Gary, Jon Swales an met your friend Kim at St George’s Crypt and the love she had for you an the journey you were on I knew as a family we had to honour that, recognise that an even say sorry that we didn’t take time see the Recovery Journey you were on, You were quiet, You loved helping make beds up in Crypt, helping out in the kitchen been one of the team, You too enjoyed blending in to the surroundings have a cuppa, meal read your paper you felt safe, welcomed even at home, we met Joe he told us what a good lad you were, wiped away my tears when the guilt hit why didn’t I get see this Tim, We heard all about TCV, Hollybush on clearing your things from that place you didn’t feel home or safe we found the files you kept certificates for various recovery courses, and your pride an Joy the Bench you’ld been working on it was beautiful. We got your Bench finished off a plaque put on, We framed some of your certificates sat them on the bench placed a cushion underneath to kneel on it would be a place sit an remember you by. I remember in my pain also feel excited about exhibiting for you, was nervous too, I remember anticipation Gary finding out if we could exhibit as subject was art for recovery and relief when said ok, I remember when I emailed your bench’s submission. A place to remember you by it honoured your journey, your fight for recovery an would now be a place we’d sit at talk to you as we worked through the devastation of your loss. I remember the day Gary collected for Mum’s I was nervous, prayed be safe in storage, be safe in transit hope people saw our sadness an pain but also our Joy for you, I hoped you’ld be watching down from heaven an beaming our Katie did good and she’s seen I did good too an hope you were smiling because you were an artist an one that was in recovery you were beating your addictions, you were giving something thing back, been a friend you were working your way back up, your Bench, your certificates they demonstrated that I just wished you were their with us as we celebrated and honoured that, I remember the day the exhibit arrived I was nervous, panicked an again excited worried would get their in time. Relieved my friend Gary from church was taking me across from Bradford to Leeds think in the car on the way over talked his head off don’t think he minded though, was lovely see my friend Sue from Church their too. I remember awaiting mum, Nat an Jay arrive was getting nervous would they make in time, also really wanted see your exhibit first before opened up to everyone but remember had wait whilst judging finished hoped they’d got your piece would see the love we had for you. I remember they opened up the exhibit their was a circus themed piece one were put heads in gaps an pic below pictured us do that, by your Bench their was a statue of a deer or horse facing your exhibit if you’ld have been their you’ld have attempted ride it, bargain for it probably would have found away have exhibited at home. I remember seeing your exhibit tucked in the corner , remember sitting an chatting with you couldn’t wait mum, nat an jay get their show them your spot when they came in their sadness an pain they were sombre nat had go early she’d let the guilt overwhelm her in wishing we’d seen your journey sooner and you should have been their wish I’d told her you wouldn’t want see her sad an you knew in your heart we were their and you understood, I wish could have told her felt same an that in away hoping entering your exhibit said that. I however though didn’t chase after her as thought would then be running out on you, your exhibit, your memory. I remember stood awaiting judging your category came up it didn’t win I felt crushed thought why didn’t they see the love for your journey your memory and felt sad for mum wanted floor swallow me up but then one of the judges said they had a prize for someone that epitomised why they were their, the reason why they put the exhibit on for, for the journey of recovery and you won the overall prize I wanted jump up and down scream yes you did it and know yes it was recognised, I remember showing you your certificate, your trophy an telling you wow you did it, I chatted to a few of the fellow artists remember mum n Gary an one of his colleagues an our jay stood chatting by your Bench an about you we all laughed and had same thought about the horse statue an in that moment I looked an smiled at your Bench because their we all were surrounding you an remembering you by. Your trophy know stands by your casket at Mums an your Bench has a place in my bedroom with your certificates on an your best shoes an cushions underneath like have a piece of you too at home with me and each night I tell you I miss you, I love you remind Myles it’s your Bench not his and laugh because your Bench really has become that place, that spot, that piece I will always have remember you by and I laugh because I know your laughing at the sentiment an I know you now know we were proud hope that when I talk to you, you look down and sit beside me and that your with me as I know begin recover from the pain of your passing, I love you forever an not a day goes by don’t miss you, I love you Tim.

Love Anxiety and the power of ” I partially love you ” my take on my anxiety for mental health awareness week this week.

This week is mental health awareness week the theme is Anxiety. This  week you will probably hear about many different ways Anxiety affects each individual differently and it’s impact can have massive implications for an individual and those around them. 

So here’s my take on how anxiety has impacted me and that is the anxiety I get when I fall in love or know someone’s fallen in love with me. 

Ive always struggled to accept I was lovesble, I’ve always seen myself as damaged goods, I’ve always thought someone loving me was dangerous, something bad would happen, I would be hurt or something bad would happen to me or I’d be punished or lose something I do hold dear.  To me that was due to been an abuse victim an also I suffered the loss of my daughter the first person I ever loved n me losing that led to my fear of love intensifying n into a full blown anxiety of and an ability have n moment I felt in love or loved meant I spiralled out of control n the anxiety my self saboteur. 

I in the past have have had to be the dominant person in a relationship, in control, need meets met, reassurances n times cared for if not I struggled n anxiety takes over it made me panic, worry, neurotic be self destructive push people away through how I was I’d go from miss nice to miss nasty, I couldn’t tell people I was trying push them away because I was scared, panicking inside, feeling overwhelmed things out of control n because in love n afraid of n not ready for n needed me control things. 

If I didn’t get or couldn’t have control, I couldn’t say what going on inside so I would either shut off, withdraw close myself off, turn myself off so didn’t feel anything n led to my anxiety n inability  be happy is part of my anxiety fear of love, that caused me spiral be demotivated n spiral from the anxiety to depression n times impacted that much I spiralled into having years of on n off chronic n enduring mental health. 

To try try protect myself at times n cope I’d become argumentative n find a person weak spot n target because I felt vulnerable n exposed n afraid n that made me heightened n I couldn’t have people see that or know that least of all person I was in love with or felt loved by I couldn’t let them see I was exposed n in love too for I feared its implications something bad will happen to me, love wasn’t good for me or healthy n damaging. So I would be cruel to the person who loved me n in turn thing turned people to hate me couldn’t have them love me pity I just couldn’t say what going on. 

Here’s an insight into just a snippet of how my anxiety impacted on someone who loved me.

By being like that my anxiety damaged people in my past who didn’t deserve. Marybeth’s dad n I no longer speak after losing our daughter I feared lose him, rejected him, told him her loss his fault I broke his spirit n heart because I too felt that told myself wasn’t good enough I lost our love I feared lose him if loved him I drove him away to point he rejected me. I think in my mind I needed him let me go I thing I thought I was protecting him from harm. 

 

I hope that he’s in love now n happy, I hope he’s found what we should have had love happy n settled n I hope he’s loved n feels that too I hope he’s respected n valued most importantly doesn’t feel damaged or at fault for anything. 

I tried do relationships for a time my anxiety destroyed quite a few to a time when starting my recovery I accepted I had a fear and anxiety n not ready for love n had learn to feel happy n me learn it ok for me to love me let alone anyone else. 

Strangely though I know am in love and a mum I still struggle with my fear an anxiety. 

I never meant to fall in love with my know oh tried keep him at arms length did tell him if thought I was developing feelings or he me I would find a way reject him an push him away and I did n do try I’d find faults n arguments but he knew I was doing n he’d address n we’d work through we learned power of communicating n be friends, by how he is with me n him been laid back in his way has helped me not need feel need control n because too how he was n their for me when really mattered n didn’t let me have control n felt better he handle something made me realise was safe to feel ok n be in love n seeing him hold our child first time I realised it ok me be happy n in love n rather than reject that n fear i actually try now protect it n helps with my anxiety of losing n having love I don’t want reject my oh or son n know I have fear of losing them but know I want protect them, ensure they happy n loved, 

my oh he says I partially love you, that’s helped me learn it ok hear someone say I love you n let someone in to love me, I can do I partially love you n feel ok n safe n happy hear, I know in my heart I love him n he love me n ” I partially love you” means so much n does wonders when trying have something that your afraid of n the power of partially love you has helped me find n have love n be in n nothing happened yet I’m ok n my fam ok. 

 

When people talked about n raised awareness of anxiety this week I wanted share my insight n how impacted me n those who love me n tried to.