The fight for answers for Tim got made harder this week on Thursday I met with our solicitor to sign and complete my compiled witness Statement and when got their she informed me article 2 was turned down by the coroner, The local council involved in my brother’s care who had no involvement with us as a family since his death an became persons of interest at this late stage an handed their submissions in late stage have come in an took temporarily control. I ask myself why an how can they do this how can one small loophole have that decision potentially took of the table, what is they are preventing not get out, what is they’re wanting to hide, I’ve asked myself do local councils have some form of power an influence over them an can they control what coroner’s can an can not do. I was hurt an angry and livid inside more so till a plan of action was formulated on how solicitor an barrister could address to not tell my mum, That was hard not telling her as after all were fighting for answers for my brother, her son. It was hard not going to her because I was upset and wanted her tell me all would be ockay and the solicitor was asking me wait so when came up with a plan of action would make it all ok. Losing article 2 means we’ve not lost means we’ve got to fight that bit harder and as a family just wanting answers it’s not fair made to fight to get that because we are not able to mourn, to grieve, inquests are lengthy, drawn out and not easy face an 14 months on it’s still been thought out what kind of inquest will be an what scope an what will be disclosed it’s not fair on families and parties of interest should always be thinking of the families but in our situation I’ve learned they don’t nor make the process easier, I have trust in our solicitor an barrister that what they’re planning to do should get the decision overturned and I’m sorry god I handed it over to you I won’t be this time in my prayers and look what’s happened my family still no were near finding peace, I will however continue have faith in our legal team as they know what they’re doing, they too believe in our families fight for answers if not for them we wouldn’t be at this point we’d, have probably given up let those with the Power an answers win and my brother’s failings. Be swept under the carpet but because we’ve a good Team we’re not well use our upset, our hurt and anger to come out fighting once more an we put that hope an faith in the legal team supporting us do that and the local council may have this round but their is a long way to go and decisions can be changed and hoping that it’s changed again soon. For families in similar situations to mine my heart goes out to you because it is hard an we don’t have anywhere go to, turn to we just have to try best fight on an carry on and it’s not easy but we do because the loved one we lost was a live that mattered something the coroner an other representatives an parties of interest seem to forget.
Their are times I don’t agree with certain social media movement #tags their are times do and #me too is one of those that do people been empowered to speak out say me too if been a victim of sexual assault or harassment. Anyone regardless of age, sex, sexuality,race,faith,disability is at risk at sometime in their live at risk off.
I have varying Mental Health Diagnosis an all of which I have no choice but self maintain because they are the result of the trauma of been a childhood sexual abuse victim it’s taken me a long time too no longer be ashamed of myself, to no longer feel dirty, to no longer hate myself, I had to learn to love myself see the good in me to be able let my family in to let them love me an me be deserving of that love an me love them back and to trust them let them be apart of my life trust they’ll protect be and be their, I tested them, pushed them away took the pain an anger I felt out on them it took them to say you scare us when you get angry but we know your hurting it’s ok was the big breakthrough needed I didn’t want no longer take my pain out on me and nor them either, I didn’t blame them.
I once got the opportunity to film a portrait of my life sadly my old trust didn’t air or broadcast but that doesn’t bother me because my mum whose also been hurt in the past got to watch and got to see and the girl on the screen me got to tell her I didn’t ever blame you an never did.
Been a victim of childhood sexual abuse continues to impact my life also does my 3 1/2 year old sons life if people pass comment about him, parents judge his behaviour and tell him off have been known turn me from calm mum to psycho mum because in my eyes I perceive as my child’s at risk from harm risk of been hurt the child abuse victim in me goes into survival self destruct and attack mode it’s not nice for me nor people around me experience and in instances I flee just scoop my son up and go but fleeing does me then a greater harm because I then internalise all the anger an frustration onto myself the childhood abuse victim inside me turns on me I’m a coward, why did you run, challenges me and can make me feel then very intimidated and in cases be paranoid and intimidated by others.
As my son gets older he’ll get used to how I am an he’ll get used see how get and he too is at risk of unnecessarily learning survival mode Behaviour I can’t help how I get nor can I help my son learning the person who hurt me though he’s too blame he preyed on me, groomed me an manipulated me destroyed me for a time an my family he’s too blame. Everytime I go into survival mode it’s because I was vulnerable, a child, I couldn’t protect myself, keep myself safe my control was took away and to an extent my abuser still has a hold on me still has some power over me.
Speaking out though gives me some control, some power, gives me strength to speak out and say Me Too and I don’t do for pity I do because I want others that maybe not yet spoken out feel that they can do too because the more people say Me Too the more control and power we can reclaim back, people that have victims can become surviviours no longer blame themselves an be ashamed.
I recently chatted with someone about my abuse they asked me because I’m a Christian does it mean I’ve to forgive my abuser an I told them no it dosent it’s ok to be rightouse about my anger towards my abuser in time I may want to work towards forgiving him but at the moment I don’t as would mean overcoming an working through that trauma an at the moment trying pretend is not their and boxing up is easier, I did tell them though I have had to work on forgiving myself an forgiving myself for the hatred had towards myself, the child abuse victim inside me has had learn to forgive me because a part inside me blamed her but she was defenceless an I see now I couldn’t prevent what happened I can just protect that part now as I do my son, I’ve had to forgive myself for blaming myself, holding myself responsible and for been ashamed of myself and even allowing myself be further sexually exploited when put myself at unnecessary risk from harm when behaved in promiscuous ways because hated myself that much.
Saying Me too and speaking out means I too can take off that burden of shame held onto and used against me an now let go off.
I hope people reading and Too been victims can find strength say Me Too as you’ll see not alone x x x Time to Take your Power Back x x
Mental Health Positive Practice Awards the biggest insult to individuals an families affected by especially to loved ones who’ve lost a loved one due failings in services and are having to fight for answers why, one of this years shortlisted entrants at her old trust did great things but is know at a new trust been their just over a year started a few weeks after my loved ones passing that trust have never behaved in away that’s worthy of positive practice towards my brother or my family but yet celebrated in the accoloade of the nomination they were a trust that demonstrated positive practice, I’d like ask then is positive practice sending a stranger to someone’s home no involvement in the care of the person who coming say sorry for their death is positive practice, is giving a grieving mother an siblings a book about bereavement positive practice is telling them the trusts going to carry out a serious incident review but I’m not involved in positive practice, Is positive practice telling a grieving mum who trying fit the pieces of a jigsaw together to find answers why that she can’t have her dead son’s medical notes because she didn’t have power of Attorney positive practice, is not having no direct contact or email address an having ring every dept within your trust to find the named professional handling the serious incident review positive practice, is it positive practice to then get handle the families complaint as well as the incident review, is it positive practice to give to someone who new post the task for them to meet the family but then decide can’t do and ok pass someone else, is it then ok then that person rush do an compile an apparently get loads of changes made coincidently the month report compiled an no family involvement positive practice and then except a mum say’s ok but yet not gone an discussed with her just sent her an her advocate through the post positive practice, is positive practice having a complaint drag on not resolved one that didn’t need be made if supported an work with the mother and family through their grieve an give them answers looking for positive practice. The nominee maybe worthy of their award but please don’t let the trust be part of that accolade and say their a trust that demonstrates positive practice because that just causes further hurt an pain an upset to families like mine especially when complaints still ongoing, answers still not given an now in the legal domain an why not named the trust that’s going to take credit for been a positive practice provider an I’ve to sit bite my tounge an stay stronger even pray an hand that upset to god an ask for peace in hope my mum gets the answers looking for so she can one day be able start to mourn an grieve her son but the why’s and how could happen and why not helped put the brick wall up an barrier to mourning up because till you can comprehend the why it’s a case then you can’t and I hate seeing my mum have to fight try be strong an worry about her not been able mourn an what will happen when she gets the answers is that positive practice have a family stuck in their grief unable mourn especially when you hold that power to answer but choose not to because saying sorry for the failings means accepting accountability positive practice. It’s also to individuals that live with mental health an access services an insult them theirs positive practice awards you shouldn’t need awards to make your staff be compassionate, challenge the way things work, initiatives should come from wanting to do through Listening an working with individuals an common sense not coproduction an through caring an isn’t caring why you signed up to the job, to make a difference an isn’t it what your their supposed to do anyway an what to your fellow colleagues an departments who want do great an positive things but are hit by staff shortages, high demands to access services, working out on the margins when hit by service cut right back an try make a difference an to them positive practice is risking burnout as they go extra mile supporting someone with complex needs go unnoticed acceptable not really because what they do goes over looked by things like positive practice awards but yet shouldn’t and they don’t care don’t get credit they’re just doing what signed up for their job, To all at the positive practice awards enjoy but to the trusts going share in ask do you really dare share in that accolade and also ask yourselves if it’s prestige an awards and accolades your driving force to ensure you get job done ask yourselves why, and remind yourselves individuals and families expect to be treat with care, with dignity, be listened to with compassion they’re not desirable criteria for positive practice it’s why you should be doing the job and providing the service you provide.
Today on my Facebook Timehop the pictures of your bench been exhibited at Leeds Art for Recovery Event popped up Tim, I remember during the time my grief felt raw an after I’d got to know Gary, Jon Swales an met your friend Kim at St George’s Crypt and the love she had for you an the journey you were on I knew as a family we had to honour that, recognise that an even say sorry that we didn’t take time see the Recovery Journey you were on, You were quiet, You loved helping make beds up in Crypt, helping out in the kitchen been one of the team, You too enjoyed blending in to the surroundings have a cuppa, meal read your paper you felt safe, welcomed even at home, we met Joe he told us what a good lad you were, wiped away my tears when the guilt hit why didn’t I get see this Tim, We heard all about TCV, Hollybush on clearing your things from that place you didn’t feel home or safe we found the files you kept certificates for various recovery courses, and your pride an Joy the Bench you’ld been working on it was beautiful. We got your Bench finished off a plaque put on, We framed some of your certificates sat them on the bench placed a cushion underneath to kneel on it would be a place sit an remember you by. I remember in my pain also feel excited about exhibiting for you, was nervous too, I remember anticipation Gary finding out if we could exhibit as subject was art for recovery and relief when said ok, I remember when I emailed your bench’s submission. A place to remember you by it honoured your journey, your fight for recovery an would now be a place we’d sit at talk to you as we worked through the devastation of your loss. I remember the day Gary collected for Mum’s I was nervous, prayed be safe in storage, be safe in transit hope people saw our sadness an pain but also our Joy for you, I hoped you’ld be watching down from heaven an beaming our Katie did good and she’s seen I did good too an hope you were smiling because you were an artist an one that was in recovery you were beating your addictions, you were giving something thing back, been a friend you were working your way back up, your Bench, your certificates they demonstrated that I just wished you were their with us as we celebrated and honoured that, I remember the day the exhibit arrived I was nervous, panicked an again excited worried would get their in time. Relieved my friend Gary from church was taking me across from Bradford to Leeds think in the car on the way over talked his head off don’t think he minded though, was lovely see my friend Sue from Church their too. I remember awaiting mum, Nat an Jay arrive was getting nervous would they make in time, also really wanted see your exhibit first before opened up to everyone but remember had wait whilst judging finished hoped they’d got your piece would see the love we had for you. I remember they opened up the exhibit their was a circus themed piece one were put heads in gaps an pic below pictured us do that, by your Bench their was a statue of a deer or horse facing your exhibit if you’ld have been their you’ld have attempted ride it, bargain for it probably would have found away have exhibited at home. I remember seeing your exhibit tucked in the corner , remember sitting an chatting with you couldn’t wait mum, nat an jay get their show them your spot when they came in their sadness an pain they were sombre nat had go early she’d let the guilt overwhelm her in wishing we’d seen your journey sooner and you should have been their wish I’d told her you wouldn’t want see her sad an you knew in your heart we were their and you understood, I wish could have told her felt same an that in away hoping entering your exhibit said that. I however though didn’t chase after her as thought would then be running out on you, your exhibit, your memory. I remember stood awaiting judging your category came up it didn’t win I felt crushed thought why didn’t they see the love for your journey your memory and felt sad for mum wanted floor swallow me up but then one of the judges said they had a prize for someone that epitomised why they were their, the reason why they put the exhibit on for, for the journey of recovery and you won the overall prize I wanted jump up and down scream yes you did it and know yes it was recognised, I remember showing you your certificate, your trophy an telling you wow you did it, I chatted to a few of the fellow artists remember mum n Gary an one of his colleagues an our jay stood chatting by your Bench an about you we all laughed and had same thought about the horse statue an in that moment I looked an smiled at your Bench because their we all were surrounding you an remembering you by. Your trophy know stands by your casket at Mums an your Bench has a place in my bedroom with your certificates on an your best shoes an cushions underneath like have a piece of you too at home with me and each night I tell you I miss you, I love you remind Myles it’s your Bench not his and laugh because your Bench really has become that place, that spot, that piece I will always have remember you by and I laugh because I know your laughing at the sentiment an I know you now know we were proud hope that when I talk to you, you look down and sit beside me and that your with me as I know begin recover from the pain of your passing, I love you forever an not a day goes by don’t miss you, I love you Tim.
The buzz word in Mental Health Stigma, we must speak out, we must were it label it lovely smiley faces on twitter at the moment I have Mental Health its ok say have , it’s ok you get help. I salute you for being proud, I salute your optimism, I used be loud, be proud open about my experiences was told was inspiring it boosted my confidence, lifted my self esteem a short lived adrenaline buzz but sadly no changes came were made, society gets an understands stigma are open to help they just don’t know we’re go, were access and get doors opened to care, Joe bloggs on the street does care, does understand I usually knows someone or even they themselves affected by. I don’t engage as much now with speaking out campaigns, wear my label on my sleeve now because I lost my brother to a preventable suicide he had both Mental Health and Substance Misuse he didn’t face stigma from his family or friends it was from the services that were meant to support him those that are now behind twitter campaigns like #I have Mental Health, I saw my brother at times at crisis took him to A and E be told he’s to ask for help is not sat in A n E over 8 hours in height of crisis not asking for help, when did ask for got turned away past from pillar to post, Even when stopped taking drugs was always told “it’s the drugs” it’s the drugs. Never asked him why he ever became an addict, Never explored his childhood upbringing, never asked Why if did ask Why they’d have seen then yes it was because of the Mental Health but they never did they stigmatised because of the substance misuse. My brother was stigmatised because of a Dx he was given Anti Social Personality Disorder the condition shut doors to access to recovery, was probably why assessments for suspected learning disability got passed up, passed up not just one professional that suspected was most who came into contact with him, why did you not do when came to you when spoke out said I’m here I need help, his protector Dennis a doll became his tormentor took his identity offer, the doll got into his head told Tim what do we his family asked for help knew he possibly wasn’t mentally ok even asked for support an help but got turned away. I do have Mental Health needs myself an manage I recognised certain things in my brother, Hearing Voices, Dissociative Identity, Depression, Obsessive an Compulsive Behaviour, self harming because he’d felt lost control needed help was not helped he openly said had but didn’t get so is why know I struggle support an engage with #IhaveMentalHealth. I’m only doing this blog because need rant get my upset, anger, frustrations out I’ve to do that to manage mine so don’t obsess about, get worked up about, have it bring me down and me turn on myself internalise and berate myself for not speaking out an challenging the #IhaveMentalHealth. The angry voice inside me wants say it’s patronising, that those that failed in my brother’s care murdered my brother they didn’t carry it out but nor did they step in an prevent it’s too late now for sorry. Campaigns like #I have Mental health are belittling to individuals and families affected an they’re belittled by the association of the unnecessary use of the word stigma, we must talk about yes stigma led to my brother doing what did but it wasn’t because of lack of understanding but care for all those professionals sharing their photos, retweeting posts ask yourselves why are you sharing, retweeting are you actually as a result of that post go out make a direct action, something that does get help, get changes made and actually stand up make a difference it’s time moved on from speaking out an do for those brave enough do, speak out, do for those who ask for help and on my post look at the photo and do for my brother Tim someone who said #IhaveMentalHealth help me the person whose voice not heard and do for my mum, my siblings an our children who have to live with his loss, live with pain knowing asked for help and enough not done because we don’t want people going through what we are.
I was once optimistic Services would improve and improve for the better initiatives an policies around crisis care, no decisions about me made without me were made the NHS an services were to be Liberated the Recovery Bus, Coproduction Bus and Person Centred Care Bus rolled up into town. Did they make a difference, Did they leave people liberated and will the new 5 year forward initiative make a lasting impact I’m sceptical it won’t because I once believed that Services Could Change Improve Lives, Help individuals Regain Control and put the person an those close to them at the centre and provide a whole person approach attitude to care. I was wrong and my optimism that Services Could do that proved to be fatal. In the last few weeks the media has been highlighting cases were deaths are been investigated and a trust is to be investigated in one case. I’ve discovered that my family is not alone as we too are fighting for answers to how our loved one could have lost his life he did not lose his life however in an inpatient setting he lost his in a transitional housing unit a unit that’s supposed to provide care for vulnerable adults who were in crisis, needed mh support, support with homelessness an substance misuse. We put our loved ones care in the trust of services an the local authority that they would ensure an provide the care an support he needed.
We sadly got it wrong we like many other families now are fighting for answers we’ve had reach out too advocacy support, lodge formal NHS complaints, left outside the serious incident review process yet had our hearts ripped wide opened when had the people running come visit us at my mums family home but yet still no answers no been asked did we want input nor told what they will learn or put in place been sent a document though however that supposedly has in can we sign off on it. How can we if you’ve not sat gone through it with us or had us been involved in any of the process no one can make a decision on something not involved in but shouldn’t we have been after all we’re searching for answers to why, why our loved ones death was not prevented. We had to reach out to a charity Inquest because we didn’t know anything about what to expect, how to be involved the types of inquests and if not for them we wouldn’t have been put in touch with a solicitor an barrister but we’ve had to meet criteria for Legal Aid an that only covered representation to help prepare the case for inquest we then had to apply for separate funding for a grant to have barrister representation at the inquest but yet the Services who failed automatically have the money behind them to represent them but for families they have to search an find that help an that’s sad it’s also sad we don’t get automatically represented as do the services as it’s a live been lost here a life that mattered and a death that should be held accountable for and answers need to be answered how could it have happened and why and was enough done theirs also issue you had a duty of care an families put that trust in you and that is why then you become accountable because that trust was put in you. As a family member I witnessed my loved one passed from pillar to post, told to ask for help an when did told couldn’t help so why tell him ask for, I saw pleas from my family ignored, I saw my loved one slowly become even more invisible, dehumanised, made feel unworthy an in end not listened too, not cared for or supported that’s hard to face an accept especiallly when don’t expect from services that were supposed to be their an provide that. Sadly my loved ones passing won’t be the last an that too is hard to accept because you then wonder what will they learn from the incident report carried out an what will they learn from the impending inquest because sadly my brother won’t be last. I also suspect under the area he came under he was sadly not the only individual failed and probably other families going through what we are too. Whilst awaiting I see initiatives around patient safety, suicide prevention an the new buzz one 5 year forward. Will they make a difference I suspect not it’s just a recycled blue print that for last few years keep rewording add a few more charts an statistics an wow a new policy or charter to follow sadly not worth paper printed out on because sadly lives are continuously been failed, no one been held accountable, no lessons been learned from, their lives not mattering. Services are still been under funded, cuts still been made, workforces at breaking point, charity sector organisations stepping up and lifting the burden from you holding you up their the ones trying the best but are not given the credit for nor do you liase with them and assist in supporting someone you just quickly like pass someone on so not on your case load yet you need to work with them they can’t do it all alone but yet as with families you isolate them too. Crisis Care is shocking too the crisis care concordat act did that make a difference if did my brother would not have been turned away twice an also got in housing were living, but sadly their isn’t enough beds in or out of are, not enough home intervention teams and respite places available an thing we’re my brother lived is only 8 crisis beds available. Wasn’t the crisis care concordat act supposed to address that. Vulnerable individuals languish in police cell’s awaiting mh assessment some end up in the prison system locked up unfairly because at crisis committed offences but because not enough beds professionals say can see unwell but doesn’t warrant admission an so under public nuisance an anti social activity get imprisoned as well as many other offences during my brother’s care that too happened just impeded him further. It makes you wonder why as a society are we allowing that to happen why is the police and judiciary system allowing that are they powerless to act against the services can’t they enforce services to act especially when they clearly know difference between a vulnerable an mentally unwell person an hardened criminal. Why is it that over the years what’s published, guidelines not implemented you’ll tweet about, talk about have development meetings about but not implement, no changes be made and very little service improvement. Yet you market yourselves, give fancy awards, and too have buzz weeks fab change week the latest so what will you do what change an implement will you make what will you do to prevent lives been lost, Will you make your services inclusive to all, stop cutting services that matter, work with organisations lifting you up, will you stop labelling an stigmatising people under your care, will you stop turning people away because don’t fit your Dx an recovery models more importantly support loved ones who’ve lost someone under your care. Families shouldn’t have to fight for answers, set up justice groups an campaigns and have to search an fight for the answers because they need compassion an care an time to grieve they don’t just deserve empathy but also deserve be treated with dignity, respect and upmost of all they need the answers so can grief, hate say have closure an make pretending moving on with life’s easier. It’s also now time ask why in this day an age why are services still continuing to fail an sadly lives been lost.
I wake up every morning not wanting get out of bed, not wanting face the outside world, I don’t want see anyone, don’t want to have to function or care, I get stressed, irritable frustrated at thought of want stay hid under the covers, I feel sick stomach thought have plod on an get a grip of myself face the day can I muster the strength to pretend I’m ok.
Today The dark clouds descended over took hold got a grip, I know am depressed, know why am depressed so today’s a fight to get through it kinda day. My sons next to me he’s hyper excited throws his lift of requests playgyms, Conker picking, my heart sinks my first parenting fail money’s tight bills due out one too many birthdays this month and thought may need replace the missing school jumper in nursery. We won’t be doing playgym this week but I’ll pretend we will I hate lying to my child and do guilt an feeling a failure hit and the sadness looms over and the irritableness stirs and thought today’s gonna be another one of those days.
I have to face the day though I have to muster all my strength I have a child who needs me a child who doesn’t realise he’s what’s keeping Mummy going her reason get up try fight each day.
I’ll snap at myself right its wake up time , wake up time it is. Right son fresh bot bot coming up, Kettle on coffee for me, tea cakes sliced in the toaster, kettle boils , toaster pop god I hope today’s one of those days nothing happens, no incidents nothing inside me gets triggered, made anxious, I don’t go into flight mode or survival attack mode an pop, It’s really not easy facing each day in day out but have to the voice from the living room shouting tea cakes, fresh bot bot reminds me have to my toddler, my saving grace. I butter the tea cakes, jam on boo’s put the lid on the bot bot give it a shake, tell Boo sit up straight breakfasts ready your energy for the day your fuel for your belly, your ready for anything if only that felt true to me as for boo it does he munches away in between mouthfuls outlines his day all things he’s going do he’s excited at all things he plans, parenting fail 2 why can’t I have his outlook his insight his innocence, his wisdom the obliviousness to his actions an the actions of others too the he doesn’t care armour because he’s not quite learned that milestone yet the one how he is affects others an how others attitudes can affect him, toddlers have great thick skin why do we lose that as we grow it would help me an awful lot if had because I can get stressed, can get upset , worked up even pop depending on my interactions with others and how day goes some days are easy and on top of world can do anything, be anything and be a something rather than feel a nothing I hate the feel am nothing days make me get even madder at myself hope n pray my son never feels as I do experience life’s cruelty like have an feels has to fight to survive, get through each day, time get ready muster all got, gotta put that mask on, gotta fight on through, breakfast ate coffee drunk, sounds of a bot bot been bled dry n teet pop sound he’s too done. Right time get ready clothes out the drawers, fill the sink , tooth brushes on the sink ready, Boo stretches over reaches for the soap wash hands Mummy, yep boo wash hands let’s wash the soap in let’s build up mummy’s mask I think inside it’s part of the process armouring up for the day , right hands washed plug out water gurgles down plug wish the things getting to me could also go down the plug hole gurgle gurgle , unfortunately though they won’t , right boo lets do them gnashers open wide it’s quite therapeutic brushing boos gnashers he gets excited when done it’s mouth dancing time doing his mouth wash n makes his wow pop noise minty fresh, his smile makes me smile a lil envious wish had his childish innocent outlook my boo he’s all medicine I need he can do life so I’ll do life too so god please let today be one of those days that goes ok. Right boo we got this let’s get dressed we’ve faced morning lets do this let’s face today an all it brings we got this, we can do this ,we got through morning we can get through the day. Because I know not everyday will feel like this, not everyday will be like today, today maybe a challenge but tomorrow will be ok so come on Boo we got this let’s get through today.